Medical Moms of NICU Podcast

Special Episode: World Kidney Day

Welcome to our special broadcast on World Kidney Day on 'Medical Moms of NICU' podcast. Joined by Tanisha, a medical mom to a kidney warrior and cancer fighter, she shares her inspiring journey from the diagnosis of her son's chronic kidney problem and bladder dysfunction to his survival and thriving six years later.
Tanisha uses this podcast to celebrate her son's life and progress, and to encourage parents navigating similar journeys. She shares the significant role of organ transplants in managing chronic illnesses and the invaluable life-saving possibilities it offers. Highlighting the value of sharing personal stories, she explains how this not only educates and increases awareness about kidney disease but also provides emotional and financial support from a community spanning across the globe.
She goes into the detailed personal experiences of living with chronic kidney disease including the daily medicine, shots, and dialysis. She also emphasizes the importance of celebrating medical milestones to gain strength for the continuous medical marathon. Further, she iterates the importance of financial planning considering the expensive nature of managing chronic illnesses and encourages listeners to leverage resources like GoFundMe campaigns and kickstarters.
Beyond her personal journey, Tanisha shares the opportunities that unfolded by partnering with nonprofits like the American Transplant Foundation and Ronald McDonald House and others. She encourages listeners to share their stories, their victories, as well as struggles, and to use her platform 'Medical Moms and NICU' to learn about resources developed over years that might aid them in their special needs journeys.
She concludes with an invitation to participate in her podcast, especially individuals and providers in the healthcare arena and nonprofits supporting special needs families. Her journey is a testament of resilience and determination and serves as a beacon of hope to many navigating similar circumstances.
Have a wonderful World Kidney Day and remember, sharing personal experiences goes a long way in spreading awareness and kindness. It's free to engage and it's a powerful tool for change.
#kidneydisease #nicu #kidneytransplant #caregiving #medicalmom #shareyourstory #dialysis

Medical Moms of NICU – Life After NICU

Welcome to Medical Moms of NICU podcast - your one-stop resource to navigate the medical system with ease after a NICU discharge. Your host, Tanisha, shares her personal journey as a medical mom to a kidney warrior and cancer fighter, in addition to being a pandemic mom of two under two. She offers tried-and-true medical mom tips and access to NICU resources and medical advice from medical experts.
This special episode focuses on Tanisha's oldest son, who is not only a kidney warrior but also an autistically awesome child. Hear about his journey of fighting chronic kidney disease since birth, being diagnosed with end-stage renal disease stage five due to a rare condition called Lower Urinary Tract Obstruction (LUTO). Tanisha shares the invaluable experience of taking the leap to seek a second opinion in Cincinnati, which led to a successful fetal intervention – giving her son a chance at life beyond initial expectations.
Get in touch with the strong community of NICU moms across the world, connect on social media platforms, Instagram and TikTok medical moms NICU, or join the Facebook community - Medical MOMunity. Also, check out the website for more informative resources - www.medicalmomsandnicu.com. Stay tuned for more episodes and remember, you are more than capable of handling your child's medically complex care.
#nicu #secondopinion #chronickidneydisease #cargiver #medicalmom

A Medical Mom's Story

Welcome to the latest episode of our Medical Moms of NICU podcast where we support moms worldwide, helping you navigate the medical system with ease. Today’s episode is hosted by Tanisha, a resilient and dedicated medical mom of a kidney warrior and cancer fighter, and a pandemic mom of two under two.
In this episode, Tanisha candidly discusses her strenuous journey as a medical mom, sharing her experiences of facing life-changing medical decisions, managing 24/7 medical care, and maneuvering challenges concerning multiple hospital admissions due to a multitude of health crises. From having a newborn baby in NICU to dealing with the aftermath of cancer, her accounts provide comfort and understanding to those dealing with similar circumstances.
While being completely immersed in one’s child's healthcare might seem necessary, Tanisha emphasizes the importance of nurturing oneself physically, mentally, and emotionally. She shares her personal process of realizing the criticality of self-care, eliminating mommy guilt, and understanding the boundaries of her role as a medical mom. Pulling from personal experience, she also shares tips for medical moms, highlighting the signs that might help them understand when a break from the hospital is possible.
Throughout her journey, Tanisha has turned her trials into tools by providing advice and resources for other medical moms, and in this episode, she encourages other moms to do the same. She ends with a call to action, asking moms to join the Facebook Medical Mom Unity Community to share their miracle stories and celebrate medical milestones together.
Join Tanisha in hearing more about her ongoing journey and the valuable insights gained through her experience in this episode as she takes a pause for the cause, encouraging all medical moms out there to refill their cup and understand their value.
#mmonday #momday #medicalmom #caregivertips #momguilt #hospitallife

The Gift of Solitude (Me Time

As Medical Moms of NICU, we are often overwhelm with hospital stays, refilling medications, attending doctor's appts, and supporting therapies to help our medically-complexed miracle THRIVE in addition to juggling marriage, work, and being present for additional children or family or friends we are connected to. It can be quite chaotic, but in this episode I celebrate the beauty of Solitude, and provide Medical Mom tips on how to maximize your time away from medical chaos.
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#motherhood #medicalmom #caregiving #postpartumsupport #mommotivation #nicu #specialneedsparenting

How to Connect with your Child in the Hospital

The hardest part of this medical marathon is watching your child in the hospital, and not knowing when they will be home. You can feel disconnected from your miracle due to the loud beeps, long medical cords, and large machines to keep your baby alive. However, this podcast shows you how to celebrate the medical milestones, encourage positive patient-provider communication, find support in medical chaos, and utilize ChildLife services to stay connected to medically-complexed child. Enjoy!
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#hospitalization #nicu #picu #mmonday #medicalmom #caregiver #momadvice #specialneedsparenting
 
 

Circle of Friends Clinic Resources

Happy MMONday! Caregiving is Challenging and a Blessing at the same time. Today's podcast episode highlights the benefits of networking with Complex Care Team to find resources in the special needs caregiving journey. I have had a very positive patient-provider relationship with my oldest son's complex care team. Within 5 years of coordinating with the complex care team our family has been able to navigate medical challenges and receive the great resources below.
Some of the Benefits of Complex Care:
-Saving on Insurance Premiums (ARHipp Program)
-Coordinating OT/PT/Speech/ABA Therapies
-Requesting Incontinence Supplies (Free Diapers/Wipes)
-Requesting Adaptable Equipment/Special Needs Beds
-Initiating Medicaid Waiver Services
May this episode bless you to navigate the medical system better. Feel free to check out medicalmomsofnicu.com/resources for further programs in this special needs parenting journey.
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#specialneedsparenting #medicalmom #nicu #chronickidneydisease #autism #caregiving #developmentaldelays #mmonday

Child Care Assistance Program

As a Medical Mom of NICU + Pandemic Mom of 2 under 3, I'm always open to finding resources that can help me manage the educational needs for my children. In this episode, I share about the Childcare Voucher Assistance program that offers parents who meet the economical requirements free childcare or discounted price. Listen to find out more about this program available at your local Department of Human Services office.
 
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Love Yourself More in 2024 (Chapter 36)

As Medical Moms of NICU, we are often juggling marriage, multiple children medical appts, unexpected hospitalizations, ordering medical supplies, attending therapies, working full or part-time, and supporting educational development of our medically-complexed child. We are great at multitasking, but rarely do we delegate what we are struggling with to someone else. This episode touches on how delegation and creating space to decompress can help you love yourself more in 2024.
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Managing Outpatient Surgery + Back to School

Happy MMONday!
This episode shares caregiving tips that came in handy as my husband had an outpatient procedure along with our medically-complexed miracle returning to school after holiday break all on MMONDAY. Today was busy from 5am-11pm CST. However, this episode shares how essential it is to prepare for back to school early, keep communication open with care team, and take pauses in between to hear your thoughts. Enjoy!
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2023 You Have Been Good To Me

Happy New Year! As we celebrate 2024, let's also take a pause and reflect on how far we come in 2023. This episode celebrates the ability to recognize when you need help in medical motherhood! What support can look like? How to advocate for yourself? And so much more! Happy MMONday!
 
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#mommotivation #nicu #medicalmom #happynewyear #newyearnewme #specialneedsmom #momadvocate #caregiver